EDS & God

Hello lovelies!!
Let’s get really deep for a minute.. Chronic Illness – sucks! 

There’s this website called ‘Inspire’ that I am a part of, and it’s a forum for people with chronic illnesses and such, where you can reach out for Hope and find help and advice.. It’s pretty great. 

I just had a conversation with a lovely fellow EDS fighter and she was telling me about her struggle getting disability insurance because people don’t really understand Elher’s Danlos and don’t know how debilitating it is. And I shared with her about what I do and how I get to work from home and make my own schedule and work it around my spoons!! And she said she couldn’t risk working just yet because she might miss out on her disability. I respect that, totally. I get it. Then she said to me that life is always against us with EDS, in so many ways. 

And it got me thinking, is it?!

Because I feel like I have grown incredibly closer to God through all of this and I cannot imagine my life without this body God gave me. He made me JUST as I am for a reason! And maybe that reason is to spread awareness about EDS, or to help others who are unable to work a 9-5 find hope to work from home, like I do? 

I just wanted to take a minute and say this.. You are perfect in Him. This body will fail and make you angry, I guarantee it. But look at all that it’s done for you!! You are a soul, you have a body. 

When I look back at all that my body has done, I’m amazed.
-I have made three babies with this body – after being told I wouldn’t get pregnant. 

-I have really good days and can carry my children around, and that’s a very good feeling!

-I am able to love my husband with this body, to hold his hand and keep our home. 

-I have had many complications and bouts of internal bleeding and.. look at me go! I’m still here. And it’s all for a reason.. I believe that with every ounce of who I am. 

He is the reason. And every thing that this broken body has done, is because of Him.

And all the glory is for Him alone. 

I will continue to be a fighter and I want to encourage you to do the same. He made you, just as you are, on purpose and FOR a purpose. 

Thank you lovelies. Jesus loves you!


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